top of page
Writer's pictureNgawai Moss

A New Horizon… Guidelines for Epilepsy in Pregnancy

The Royal College of Obstetricians and Gynaecologists is embarking on the review and update of the Green-top Guidelines for managing epilepsy during pregnancy. This marks a step forward to offer better care and support for pregnant women living with epilepsy.

 

The process is in its early stages and builds on the previous version of the guidelines. I have the privilege of contributing from a patient and public involvement perspective helping to ensure that the voices of women with epilepsy and their families are not just heard but integral to the guidance that is created.

 

Here are some (of the many!) key elements I'm advocating for in the updated guidance…


Shifting the Narrative - Balancing Risks and Benefits

A critical area that I feel is important when framing the guidelines is balancing discussions around the risks and benefits of managing epilepsy treatment during pregnancy. Often, the narrative leans heavily towards the potential risks to baby, overshadowing the benefits of effective epilepsy management for both the mother and baby's health.

 

Preconception Counselling

When guiding women and families on their path to parenthood I think it is important to ensure women are equipped with personalised advice and information, enabling them to navigate their health and pregnancy with confidence.

 

Encouraging Participation in Research and Registries

I've also emphasised the importance of encouraging women's participation in research studies including the UK Epilepsy and Pregnancy Register. Awareness and access to such opportunities enable women to contribute to the advancement of understanding around epilepsy, pregnancy and beyond, which is crucial for driving improvements in care and treatment options longer term.

 

The Role of Partners - An Undervalued Support System

I’ve highlighted the important role of partners for women with epilepsy, they often play a critical role in helping us manage day to day and can be especially pivotal during pregnancy so I hope the guidelines will help recognise and support them as well.

 

Understanding the Interplay Between Pregnancy and Epilepsy

The relationship between pregnancy and epilepsy - how epilepsy may influence pregnancy and, conversely, how pregnancy can impact epilepsy management should also be a consideration when providing care.

 

The Importance of Mental Health

I think it’s also important to highlight the prevalence and impact of mental health challenges, including anxiety and depression, which can intensify during pregnancy and postpartum life. I think guidelines should ensure some mental health support is part of women’s care plan, recognising its impact on both the woman and her family.

Comments


Commenting has been turned off.
bottom of page